A five-year-old boy with a condition caused by a genetic mutation is hosting a coffee morning to help raise funds for a special sleep chamber.
Alfie Barbour, from Whissendine, suffers from Cowden syndrome, which causes tumour-like growths called hamartomas and an increased risk of developing certain cancers. In Alfie, it has also led to him having learning difficulties with a lot of autistic tendencies.
Alfie struggles with his sleep and his family are keen to buy him a special sleep chamber, where he can relax in a calm environment.
To help raise funds for the chamber, Alfie, his parents Chris and Rebecca, and his siblings Demi, 12, and Jake, 10, will hold a coffee morning and raffle at Whissendine Sports Club from 10.30am to 12.30pm on Sunday, December 13. Dad Chris hopes to see plenty of people there to help his son.
Describing Alfie’s condition, he said: “He has no speech and can be very obsessive in nature. He has no danger awareness and very poor collective communicative skills; as you can imagine, it can be very frightening.
“Clinically at this moment in time Alfie is okay although we are under a vast array of consultants at the Leicester Royal Infirmary to keep a check on everything going on in his body. But as a family our main problem at this moment in time is sleep, which is consistently poor and causes issues with health and happiness for everybody.”
Local businesses have donated some great raffle prizes. There will also be soft play equipment for youngsters to enjoy.