Funding fight goes to Westminster

Rob Hughes with the manifesto EMN-150319-093744001
Rob Hughes with the manifesto EMN-150319-093744001

The father of a young girl who died of a brain tumour has taken the family’s campaign for investment into finding a cure to Westminster.

Rob Hughes, 59,was among families, carers, scientists, charities and politicians who joined the national charity Brain Tumour Research in urging MPs to reverse the “unacceptable” level of investment into finding a cure and improving treatments for the 16,000 people diagnosed each year.

Together with his wife Carole, Rob, of Pilsgate near Barnack, founded the charity Anna’s Hope in memory of their daughter who died in 2006 aged three years and eight months, to help children and young people and their families. Anna’s Hope is a member charity of Brain Tumour Research, which provides support and rehabilitation.

Anna was among those remembered at a reception held at Speaker’s House, within the Palace of Westminster, by kind permission of patron of Brain Tumour Research the Rt Hon John Bercow MP, Speaker of the House of Commons.

The event on Wednesday last week was held to acknowledge the contribution made by activists across the UK who signed an online petition calling for more investment. With more than 120,000 people signing, the funding issue will be scheduled for a House of Commons debate.

Rob said: “It makes me angry that there is such a disparity between the numbers of children with brain tumours and the level of funding. It is almost 10 years since we lost Anna, yet parents are still faced with no real choice in treatment options that will make a difference. That’s why Anna’s Hope is joining with Brain Tumour Research today to push for change.”

He said: “Brain tumours kill more children and adults under the age of 40 than any other cancer yet just one per cent of the national spend on cancer research has been allocated to this devastating disease. This is unacceptable. At the current rate of spend it will take 100 years to find a cure.”

Brain Tumour Research is galvanising people to lobby their MPs to urge them to attend the debate. Visit www.bit.ly/campaign4cure