A health watchdog has shared the progress of a scheme to collect people’s experiences of dementia.
Healthwatch Rutland held a conference last month to discuss the responses to its call last year to hear from dementia patients and there carers.
Afterwards chairman of the conference Margaret Demaine said: “It has been a very busy winter listening to the experiences of people with dementia, their carers and professionals. We are now building up a clearer picture of the dementia pathway of care in Rutland.
“Some parts of the service are very good indeed and these have been praised but there are other areas where greater help could have been given to help families get through a very difficult time.”
The conference gathered key messages from those living with dementia and their carer. Common themes included:
- The length of time to get a formal diagnosis was too long, resulting in extra stress.
- Support was lacking when it was needed most, immediately after diagnosis.
- Getting joined-up hospital and GP services across county boundaries was not working well.
- The nationally-recommended care co-ordinator scheme was not happening for many people.
- Carers felt they could do with more help from voluntary organisations.
The watchdog is still keen to hear from people. To get in touch call 01572 720831, or e-mail firstname.lastname@example.org.