Whissendine pupil Luc runs five miles for Ehlers Danlos Syndrome Support UK

Luc Richardson, from Oakham EMN-150206-160505001
Luc Richardson, from Oakham EMN-150206-160505001

A young boy ran five miles on Sunday in aid of a charity close to his family’s hearts.

Nine-year-old Luc Richardson, a pupil at Whissendine Primary School, took it upon himself to do the challenge in aid of the Ehlers Danlos Syndrome Support UK.

Luc Richardson, from Oakham EMN-150206-160454001

Luc Richardson, from Oakham EMN-150206-160454001

The charity held an awareness month in May as the condition is rare and little is known about it.

The syndrome is a group of inherited disorders that affect the connective tissues and cause sufferers to have loose joints, which are prone to dislocating, as well as sprains and bruising more easily. There’s currently no cure.

Luc’s older sister Kitty, 14, suffers from the condition.

Their parents Abigail and Pete Richardson, of Oakham, are incredibly proud of Luc’s efforts. He started his run in Hambleton and finished at the Rutland County Show to applause from visitors.

Abigail said Luc had shown great determination in completing the run, spurred on by a training plan from his dad.

Abigail said Kitty, a pupil at Stamford High School, deals with her condition “very well” despite the fact it flares up with no warning. She described the condition as “pretty awful”.

She said her children were “either fighting or cuddling” but said they were close.

Luc was aware of the awareness month but had not previously expressed an interest in fundraising.

But his incredible efforts have so far raised more than £500 and Kitty herself has put together a nine-track CD to raise further funds. It is called Two Minds and is available to buy on iTunes and Amazon.

To sponsor Luc visit www.justgiving.com/Luc-Richardson.